Champaign County Down Syndrome Network

• CU Special Recreation - (217) 398-2374
• Developmental Services Center
  • Children's Services - (217) 359-0287
  • Adult & Respite Services - (217) 356-9176
• Child & Family Connections - (800) 877-1152
• Illinois Early Intervention
• Special Olympics of Illinois, Eastern Prairie Section - GeorgeAnn Kulton (217) 355-1750

• Illinois Division of Developmental Disabilities
  Local case coordination agencies
  Contact for PUNS program—Prioritization of Urgency of Need for Services—for those with a developmental disability who have a need for services or support, including: In-home Supports, Respite Care, Job Coaches, Residential Living Arrangements, Adaptive Equipment, Other Supports
  
  
• The Family Support Network of Illinois
  
  
• Illinois LifeSpan Project
  Advocacy & resources for persons with developmental disabilities
  
  
• Family to Family Health Information & Training Project
  Information about health and health care
  
  
• Illinois Division of Human Services
  
  
• Illinois Division of Rehabilitative Services
  Helps individuals achieve full community participation through employment, education, and independent living opportunities. Also determines eligibility for SSI and SSDI.

• American Academy of Pediatrics—Health Supervision for Children with DS
  Guidelines for health supervision by physicians for persons with Down syndrome, from infancy to adulthood

• Ann Whitehill Down Syndrome Clinic
  Riley Hospital
  702 Barnhill Dr., Room 1601
  Indianapolis, IN  46202
  317-274-4846
  

• The Arc of Illinois
  

• CCAR Industries
  1530 Lincoln Avenue Charleston, Illinois 61920
  217-348-0127
  CCAR Industries is a not-for-profit human services agency providing a variety of services to persons with disabilities and their families.  Services include early intervention, developmental training, vocational training, client and family support, and residential services. 

• Child and Family Connections #16
  Serves the following counties: Champaign, Ford, Iroquois, Livingston, McLean, Vermillion
  Crosspoint Human Services
  309 N. Logan
  Danville, IL  61832
  800-877-1152             217-442-8097

• Child and Family Connections #19
  Serves the following counties: Clark, Coles, Cumberland, DeWitt, Douglas, Edgar, Macon, Moultrie, Piatt, Shelby
  Macon County Community Mental Health Board
  132 S. Water Suite 604
  Decatur, IL 62523
  800-758-2705             217-423-6199

• Disability Solutions
  14535 Westlake Drive Suite A-2 Lake Oswego, OR
  A free newsletter that contains useful, sensitive, and current information relevant to Down syndrome for parents, families, self-advocates and professionals.

• Division of Specialized Care for Children
  Champaign Regional Office
  510 Devonshire, Suite A Champaign, IL 61820-7306 217-333-6528
  Provides Illinois children birth to age 21, who qualify, no-cost diagnostic services if it is suspected that an eligible medical condition exists. DSCC can also provide financial assistance if the child has an eligible medical condition which can be improved through medical treatment and the family needs help to afford the treatment.  DSCC helps children with disabilities, and those who have conditions which may lead to disabilities, grow and develop to the full extent of their abilities.

• Down Syndrome Clinic of Cincinnati
  Children’s Hospital Medical Center
  333 Burnet Ave.
  Cincinnati, OH  45229
  513-636-6755
  800-344-CHMC
  

• Down Syndrome Clinic of LaRabida
  Children’s Hospital
  East 65th and Lake Michigan
  Chicago, IL  60649
  773-753-8646

• Down Syndrome: Health Issues
  Compilation of essays about health issues important to people with Down syndrome, written by Dr. Len Leshin, MD, a pediatrician and father to a son, who also happens to have DS.

• Down Syndrome Information Network
  The Down Syndrome Information Network offers a range of information resources and online services to the international Down syndrome community. It aims to provide information and services for families, professionals and researchers worldwide. This website has over 1,000 pages of information, equivalent to at least 6,000 printed pages.

• Eastern Illinois Area of Special Education (EIASE)
  Cooperative which services the educational needs of all children with disabilities ages 3-21.  Serves 29 school districts in the following eight counties: Clark, Coles, Cumberland, Douglas, Edgar, Effingham, Moultrie, and Shelby.

• Illinois Early Childhood Intervention Clearinghouse
  Provides library and information services on early intervention issues throughout Illinois, including information on health, educational, disability and developmental concerns of infants and young children.

• Illinois State Board of Education - Access & Equity for All Young Children
  This is a guidebook written to promote and encourage increased access for preschool children to be educated among their typically developing peers in preschool programs.
  
  
• Illinois State Board of Education - Parent’s Guide: The Educational Rights of Students with Disabilities

• NICHCY—National Dissemination Center for Children with Disabilities

• National Down Syndrome Congress
  1370 Center Drive, Suite 102
  Atlanta, GA  30338
  info@ndsccenter.org
  800-232-NDSC

• National Down Syndrome Society
  666 Broadway
  New York, NY  10012
  info@ndss.org
  800-221-4602

• Riverbend Down Syndrome Parent Support Group
  This site provides a wealth of information on topics pertinent to Down syndrome, including language and communication, early intervention, life planning, medical topics, and therapies, among others.

• Special Needs Future Planning
  Brian Rubin, attorney for special needs planning & trusts.  Has lots of links.

• Special Needs Project
  A unique disabilities bookstore, with books, videos, DVDs, and related items about mental and physical disabilities...for parents, professionals, educators, family members and persons with a disability.

• STARnet
  Illinois STARnet provides a variety of opportunities for personal and professional growth for those who touch the lives of young children, ages birth through eight, with an emphasis on children with special needs. STARnet supports family-centered, researched and effective practices in early childhood education and care.

• St. Vincent Hospital Down Syndrome Clinic
  8402 Harcourt Road, Suite 732
  Indianapolis, IN  46260
  317-338-5288

• Wrightslaw--Special Education Law & Advocacy
  Wrightslaw provides online resources and articles, books, and seminars all over the country